Anyone out there in fibro land seem to bruise easily? And/or have bruises hang around longer than normal. Or even grow in size?
Last year I had a bruise on my hand from an IV site that was there for 4 weeks and for a while kept growing. Just when Dr. P was going to send me to a hematologist, it started shrinking.
I have another one again from an IV stick two weeks ago. It’s still pretty small (the size of a nickel?) but does seem to be growing. I see Dr. P tomorrow.
Dr. K wrote me a referral to a new rheumatologist at one of the university hospitals. Dr. H has decided to stop listening to what I say. He was all like, you don’t have rheumatoid arthritis. Fine. Whatever. I get that. But my hands still hurt like hell and I’m having trouble opening jars of stuff. I’ve got a jar of spaghetti sauce in my cabinet that I doubt I’ll ever get open.
And I’m tired. I’m so tired. I gotta get up early tomorrow so I can see Dr. P and maybe fit in a visit to Dr. K. Oh yeah, he gave me the wonderful news that I have tendonitis in my right Achilles tendon. And for no good reason.
For those of you who don’t speak abbreviation soup (and it took me 5 minutes to remember the word abbreviation), those would be Activities of Daily Living.
Yeah, I’m starting to get big fails on those. Open a jar of spaghetti sauce: Fail. Opening a bottle of juice: Fail. Lift up a 2L bottle of water out of the refrigerator: Fail. Do a load of laundry without stopping at least twice to rest: Fail. Getting out of bed without a chair there to support myself: Fail. Walking steps normally: Fail.
Everything takes ten times longer. Except for showers. I’ve got those down to a 4 minute science. The water hitting my skin hurts too much.
I feel like one big failure. I can’t even reach up to the top of the white board. I’m limited to about eye height.
I know stress is making things worse. But I’m seriously trying not to kill people at work. If all goes well, I’m out of there in two weeks. I may break down and beg the new school to let me sign a contract earlier and work on other things (oye, I think I’m the IT person now) before I’d actually start teaching.
I couldn’t give three shits about Halloween. Put this new theme seems perfect.
I saw both p-doc and rheumy last week. P-doc added Lexapro back in the mix and is possibly trying to kill me with benzos. No, I kid you not. He’s got me on Ativan, Klonopin and Valium. I’m not sure what he’s thinking. And at the moment, I don’t care. Since starting this new combo I’ve been having panic attacks, which seems nearly impossible with the benzo load I’m on. I’m hoping it’s just a new job/moving/pain reaction.
Speaking of pain, rheumy discontinued the Tramadol. After one night of pain, I promptly said, screw that and took the Tramadol I bought with me. 6.5 hours of straight teaching plus a walk to and from work leads to pain. He also cut the Gabapentin from 900 mg to 200 mg. We’re going to have a chat about that. I suppose the panic could be related to these meds changes, but see benzo combo above… He also tested me for Rheumatoid Arthritis. Since the cat scratch, I’ve had terrible pain in my small joints. I also have a history of chronically high inflammatory markers. Not to mention, there’s the family history of RA. I’ll get my results Wednesday.
I’m going to sign off as typing hurts. :-(
The weather has been killing me all weekend. It started Friday when the rain moved in. I have to be happy and chipper at work, so I just pushed through the pain. Saturday, I tried to do the self care stuff, like taking a walk. It wasn’t raining, but the weather was gloomy. That in itself was kind of depressing, which didn’t help things. Today I made sure to open the shades and windows to get some fresh air in. I didn’t go out for a walk because, frankly, I hurt too bad. I did some gentle stretches and took a long nap. I did get some work done. I did a load of laundry and fought with the drying rack (*sob* I miss the dryer). There really isn’t any room to set up the rack, so the hell with it. I’m going to send my clothes out to be cleaned. I have better things to do with my energy than laundry.
It’s a long holiday weekend. We would have had Monday and Wednesday off, so the school director gave us Tuesday as well. I’m going to take the opportunity to see my p-doc and rheumy. I have a sneaking suspicion that the big infection I had may have triggered RA. I had joint pain before with the fibro, but never in my fingers, hands, toes and feet. From some internet sleuthing, it seems like infection can trigger RA and I do have a family history of it. If it is the case and I do, well, it’s just one more thing. I swear I lost the genetic lottery big time.
24 hours of airports and airplanes will do that to you. I haven’t really cried from pain in a long time, but you’re damn right I did going across the Pacific. My tailbone is killing me. And for me, with pain comes the oh so fun nausea, made even more fun from motion sickness.
Oh well. I’m safely in Korea now. One day this week I’ll actually figure out where I’m living and the easiest way to get to my doc’s office. Or one of them at least. Getting there isn’t bad, the problem is getting home. I don’t have any idea what part of Daejeon I’m in.